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Sooner Success A Failure?


Sooner Success’(found at this url http://soonersuccess.ouhsc.edu/ ), originally the way I understood this it was to be  a; formative innovative concept to help the disability community including the person and family in Oklahoma …on a personal spin!  Oklahoma would place a coordinator in every county.

Another word for this coordinator that sums up my understanding of job is a liaison or go between. When parents were stressed locating the necessary resources for their child or adult child with disabilities getting a hold of the Sooner Success County Coordinator was the end all to problems encountered by families. Whatever the community needed this person could do. Some examples might be help filling out forms, simply giving out information or helping get necessary training in the county. I thought this meant, believe I read this at one time, that the Coordinator would contact other agencies and programs or see what the hold up seemed to be. Also, I thought this meant going with parents if needed.

How many know what the Switcheroo is in a con game? Now, I realize verification is best. Heck, if I had known this was coming, I would have taken down the exact specifications listed by Sooner Success. My memory is darn near close to pretty good to excellent on the scales. But because I believe this agency is pulling the old bate and switch with their mission statement I can’t prove this. Sooner Success as a baby agency that already learned to downsize their programs to a limited amount learning the term “referral” very fast.
Here below are some other “referral” agencies or groups funded by either the state, federal or both:

Oklahoma Family Network (has been rolled up into this program somehow I think)

Oasis (which has been rolled up into this program somehow I think)

Oklahoma Autism Network

Center For Learning and Leadership

Parent Center

Disability Law Center

Possibly Disability Council?

Office Disability Concerns
There are other groups that act as “referral” agencies. Many that refer people provide trainings and a few other services. MY MAIN POINT IS THAT THE INDIVIDUAL PERSONAL SERVICE of being a liaison aiding the disabled community with resources while cutting through red tape disappeared in puff of smoke. I know because when trouble cropped up during an application process my phone call to the coordinator wastes my time during my efforts locating services and resources for my son with autism..

Theoretically, a county coordinator can start a job without a college degree and a salary higher than a teacher. Do any of you own a business? If you use a professional do you always seek out another to check their work? Why as a tax payer, would you want to waste this much money in duplicating services where the end produces little improvement in service to the target client? If duplication, triplification or quadruplication of agencies were cut with the a state question mandating the savings were to spent on services to the target clients in the form of therapy, transportation or things that improved quality of life in carefully worded language; would you vote for this measure? How about the same area serving elderly?

Pretend for a moment your profession is one of investigations. This time the target is School Support Services (found at this url https://www.oumedicine.com/department-of-pediatrics/department-sections/devbehav/child-study-center/programs-and-clinical-services/school-support-services) is another agency or group set up to support those with learning disabilities or developmental delays. My comprehension of this program is funding comes from both federal and state governments and Oklahoma school districts also required to pay to use the services. A number of years have elapsed since dealing with this group. Here is another url http://autismcenterok.org/ to go to if interested; I EMPHASIZE THIS IS A MUST!

Rephrasing of mission statements and websites reworked for optimal eye appeal known as marketing resulting in changes to this area have occurred since my last visit. I recollect words to the effect that a child in need or family without the resources for school support services or early autism treatment would receive treatment regardless of financial status. Agencies or groups wise up. You see I liked what I read on this site about evaluations. Insurance didn’t pay for these things back then and expensive was stamped all over the services.

I inquired of my son’s teacher at the time. Of course his teacher said she was in fear for her job. Requesting services that cost a school district money are doubtfully the way to get on the escalator to a promotion for teachers. My mind went to questioning a few things. You see my resume contains a manifold list of skills, jobs, education and volunteer areas. As a pharmacist, I am familiar with the concept of “capitation.” This process is where an insurance group, usually a health maintenance organization (HMO) pays a provider (doctor or medical group) one fee to cover the medical needs say for instance you own a business and you purchase insurance from this HMO to give medical insurance to your employees. Another form of this business arrangement is if in your business you pay one fee a year to a maintenance provider to keep all your machines like printers and computers working. If your machines never break down it is basically an insurance to keep you up and running. However, if you have multiple breakdowns the cost to you for this expense is the same.
Besides being a pharmacist, I have a Master’s of Science in Management. I taught high school for a short time  of over a year via alternative certification. I went back to pharmacy for less hours, better benefits, needing family time to work with my son age three that had autism because insurance didn’t cover all the therapy needed, and I hate to say this loving most of the children but better working conditions overall. Volunteering expands my skills into a variety of other areas.

The only people that might provide an answer to some of the questions racing through my mind had to be the financial office of the school district. Thus, I called. “Does the district have a contract with School Support Services at OU? Plus, if the district does is it a per use cost agreement or a capitation contract?”

“Yes, our district has a contract with School Support Services that stipulates capitation as the agreement for services. I am sure you understand this but that means we pay one fee for the service and the number of uses is unlimited to be regulated only by making appointments that are reasonable. Office machine repair is commonly entered into in this manner. Did you understand what I said? Can I help you further or do you require more information or assistance?” Asked the lady on the other end of the phone at my son’s school district financial office.

“NO THANK YOU! I do appreciate your time and the information you have given me. I get what you said and need no explanation or further assistance. Again, thank you very much for your help and all the time. You have no idea how grateful I am to get this data. Have a nice day. Bye.” Chirping in a happy mood I hang up the phone.

Next, I call School Support Services. You see after my wreck in 2008 I had time to research and locate more resources for my son with autism. The school district my son went to offered plenty to him and the family for which I was thankful. The special education director advertised on Cox Cable’s Community Channel that was in existence at the time. The library had a weekly comment newsletter with events listed for people to take. One time I sat down to discuss this with him. He told me he advertises the school district’s responsibility to search out children age 3 to 21 with disabilities and provide necessary services for them after an evaluation process to se if they met qualifications for the program.

School Support Services says to contact them or your school district for services. During my call I asked, “Why don’t you list the districts you have a contract with on your website!”

This way parents will know in advance if the district is trying to side step issues with them. After the wreck a number of the programs like this one were about teaching me to write a lengthy IEP (Individual Education Program) detailing and trying to get the schools to pay for as much as possible. To a point I get this. What people do not realize is the schools have limited resources in budgets already. Another big problem is teacher’s are pushed to the max. I think it comes down to a piece of paper that means little if the teacher is trying but cannot execute the IEP or the school district for that matter.

School Support Services asked me how I found out the contract with school district’s based on capitation and much more. I told them it took a little thinking and asking key offices a few questions to get the knowledge I sought. Then I went on to say that I believed some parents gladly would pay or offer donations to supplement the balance I knew the program was leaking. Trust me I knew even with all the support from federal, state and one time fee from the school districts, costs for the program were over the total sum. Yet, as a parent I knew the cost of paying privately for this and seeing it reduced drastically was something I could appreciate. My suggestions for innovations or doing things different fell on deaf ears like every time I offer such a solution.

School Support Services is one example of many groups that like to hold the schools accountable for so many sins. In so many frames of times I have turned the tables to explore how a group can be or should be more responsible to most innocent, needy and helpless segments of our community in their outreach to provide a service to this community to be met with vile distaste for my suggestion in acceptance of any responsibility in this area.

Neither of these agencies or groups is alone in a sea of entities servicing the disabled. Disinformation or being given out right wrong info starting me down a journey on Wrong Street is an event of more than one date. Reaching out for services for my son that would provide basic housing and supports when my husband I die because there is no family or siblings for him to fall upon if he doesn’t reach the potential I think he will concluded in another fiasco of similar outcomes. Once I had my son in this program, which one must gain entrance before the age of twenty-one now due to changes in policy, the service, people and program is excellent for what the budget allows. I tried to call people to tell them but they are tired of what they perceive as anger and rhetoric.

It is late and I am tired but there is more. I will write about these another day. Yet, I have to talk about the good I found too. Vonda Martin, then an employee of the Center for Learning and Leadership found a social group, OKAY, for my son that ran by a special lady that retired now. Dee Blose allowed me to volunteer and help a group of young adults that gave me so much more than I gave. Jody Harlan, that works for Oklahoma Department Vocational and Rehabilitation Services, has been available to answer questions and on occasion advocate for me. Joni Bruce, head of Oklahoma Family Network, is owed a few thanks for things she has done helping me with agendas associated with doing right or locating resources for my son’s needs.

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Hold on to your drawers.


Going through some old things in a “JUNK HEAP,” I found this drawer and old candy shipment boxes. I got the idea to do a collage in a drawer; while using the drawer as the frame.

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Psychological Testing Surely Govenrment Regulated! Notta


Update to post:

Sigmund Freud was a drug addict.  He has problems in passing Medical School.   Were some of his “enlighting momemnts” made under the influence of drugs?  Did he start the sexual revolution because he had hidden issues?  Just some questions I think are fair and need to be brought up.

http://en.wikipedia.org/wiki/Sigmund_Freud

http://www.pbs.org/youngdrfreud/

http://www.pbs.org/newshour/bb/health-july-dec11-addiction_10-17/

NO POST TESTING OF PSYCHOLOGICAL TESTS ARE DONE LIKE THE FDA REQUIRES OF DRUGS.

THAT means that people tested using these devices were not followed to see if the diagnosis was right.   Why require this for dugs….side effects and such, but not for psychological devices used to diagnose?

Psychological Testing Surely Govenrment Regulated! Notta

Let me start with a definition of a medical device that is set by the FDA, that regulates such:

“…an instrument, apparatus, implement, machine, contrivance, implant, invitro reagent,

……which is intended for use in the diagnosis of disease or other conditions, or in the cure,

mitigation, treatment of prevention of disease, in man or other animals.”

Then basically it should be under the regulations of the FDA. At least that is my opinion.

  • First let us consider testing for learning disabilities(this could be diagnosis or other conditions).
  • Mental disorders or mental illness(this is diagnosis,an instrument, implement, mitigation in man).
  • Treatment and prevention(I would say they are used this way)

Who does regulate it if the FDA does not? Another government agency? No the regulation of these tests are done on a voluntary basis by the American Psychological Association. Let me see a self regulated industry. Does anybody else see how this could lead to corruption? Or at least ethical issues? With no oversight by any one outside the profession a perspective can certainly be skewed. This is something a psychologist tries to avoid.

Before I go to far I want to list some information you can check out that has made me become so vehemently against these tests….or at least to a list of questions around them that need to be addressed. I can’t remember all the books I read but I found one that has a lot of good information. Also, some comes from my personal knowledge due to my profession. So feel free to check these out. Let me restate this in a more reasonable way. These tests must be regulated to offer protection to those that may suffer harm from improper use of: test data that is unproven or on verifiable, and long term studies must be done to see what ill effects have happened because of wrong conclusion drawn from these tests. Drug companies have to answer for quite a bit. They have to do post marketing studies to see what the drugs do to people long term.

  • A book by the name of The Cult of Personality : How Personality Tests Are Leading Us To Miseducate by Annie Murphy Paul. One can read a few pages free on Amazon.com. The introduction part will provide enough basic information for him/her to get an idea about some of the issues with these tests.
  • Here is a website where one can see a psychologist’s view of the famous inkblot test. Which is that it is basically worthless. You even get to see the inkblots. Here it is http://www.deltabravo.net/rorschach.php
  • Here is a website to an article by a law professor, I think. You can be certain when you go there. It talks about how the tests are normed and that they are accurate. He does admit that the math involved is very complicated. My problem deals with the groups they are normed against. Also, the people that make the test verify the data and do not submit it to anybody else. Drug companies must submit their data to the FDA before a drug can be brought to market to make sure it is safe. I recommend just glancing over this site. http://www.momnd.com/CM/articles/psycholigical-testing.pdf
  • This one is amazing. It deals with the development of the MMPI. It talks about how great this test is. It says the MMPI is normed against people in a hospital and friends or relatives that visited the hospital. It fails to mention, as Paul clarifies in her book, that the hospital is a mental hospital. The common theory out today, almost taken as gospel, is that mental illness has a very high genetic component. Variations on specific areas of the DNA are associated with a higher incidence of bipolar, schizophrenia and autism. Thus these run in families according to current theory(check usa.gov search genetic connection of all). Here is the kicker. Everyone says the MMPI is so accurate. This lists what I have read in other sources. Want to guess how accurate? WELL THE ACCURACY OF THE MMPI IS RATED AT 60%. That is about as good as a coin toss. Here is the site.
  • http://www.readbag.com/web-psych-ualberta-ca-chrisw-l10mmpi-l10mmpi page 5 power point presentation. the old link no longer works

Before I start on more negative comments I want to state a few positive. Psychologists are not bad. I am not knocking them. They help a number of people work through a lot of problems and they save lives every year. The most effective course of treatment for depression has been identified as treatment with drugs and psychotherapy. I am just pointing out some issues that I feel need to be addressed. I asked the American Psychological Association about this and received no reply. I talked with a publisher of one of these tests and all they could say was I needed to talk to the person that administered the test.

  • Why would the American Psychological Association not want a separate agency to regulate them? It would show the tests are verified by an independent source.
  • How can the publishers of these test get out of any liability? And just state all the problems rest on the person that gave the test? Let me use the MMPI as an example. If it is almost a toss up at being right say drug treatment is started based on it or someone is deemed and unfit parent? Assume later it is found out the test finding were wrong, wouldn’t you want some way to fight back at the test? I know I would. Can a drug company just day talk to the doctor that gave you the drug? Of course not.
  • Now let us go back basic things that the tests makers, providers and publishers should have to do. A person should be given clear instructions about the test, how it is given, what it is for, the success/failure rate, what can influence it, if they can decline to answer some questions and how that will effect the outcome, if it is given to a child how it can effect that child’s mental health for the rest of his/her life, what trauma can be inflicted……..?
  • Drug companies have to hand out inserts on specific drugs, most pharmacies give information on drugs the first time you get if not every time, patients have to read something before surgery(by the way there are long term studies on things implanted in you) and every one knows about hippa. Shouldn’t these tests come with information leaflets? After all they are used in court everyday to help determine custody and more.

I will say just a little more about the tests before I get a little more personal, which will explain why I am so knowledgeable about this. Plus you may come to understand why it is so important if you don’t agree with me already.

I already explained how the MMPI development sprung from the bed of a mental institution. Well the birth of the inkblot test has problems too in my opinion. If you looked at the link I posted it showed that almost each inkblot could have a sexual connotation. I don’t know if this is from the original makers but it would not be a surprise. They were after all by a doctor and an assistant-mistress. What kind of morale’s were being projected? Was their sexually relationship spilling over into the professional one? Were they nympho’s? So again when these people norm these things remember the influence of the people giving the test, the history of the test and so forth.

Now I would like to share a little bit of my personal experience with the tests and some neuropsychologists. I have concerns about these tests and for our military men coming back from war with brain injuries.

Those of you that believe in God remember this. Proverbs 29:11-A fool uttereth all his mind: but a wise man keepeth it in till afterwards. This is not lying. It is being wise. The only time one must tell the whole truth and nothing but is in court. Everybody is entitle to his/her privacy.

At 18 years of age, just before starting college classwork, I had to take the MMPI. The thought was keep certain people out of this type of job. You see they don’t want just anybody behind the counter of a pharmacy. The practice of giving this test has been dropped at the school I attended because of lack of reliability. At least that is what I was told by someone that is still on board there as an employee.

How is an 18 year old girl to answer: Are you happy with your sex life? I answered yes. The thought of someone asking me this and it being a requirement was unsettling to me. The guys giving the test said any girls that say no to that question can see them after the test.

Next were questions about when one is in the bathroom. How many of you have been taught this is not polite to talk about? Would it not be weird for a test to ask such stuff? And the test was so long. Some people may get tired and just not pay that much attention at the end and mark anything. Or some may be so stunned, traumatized or shocked their answers mean nothing. This test may have kept some from becoming what they had dreamed of all their life. Okay now it is thirty years later and I don’t believe anybody has followed up any of those taking the test to see if it screened those people correctly. Remember the test is very accurate at 60%. I am sure it has dashed some one’s career hopes or dreams. Does that sound worth giving the test? Here we have so much hippa that is hard to practice in the health care field. But this test can almost perform a personal privacy rape and not one person says a thing. Do some girls wonder if they are normal and make a swing toward sexual experimentation upon reflection of this test?

I recall a friend that was going to be a teacher taking one of these test. I think it was the MMPI but can’t say that with complete recall. The test was not kind to her. She had to pass an interview with the complete Education faculty in order to stay in the teaching program. Today she is fine teacher of quite a few years. I think what she was really suffering was a lack of maturity at the time and too much freedom.

I now come to what has happened to me in the last three and half years. I had a wreck that resulted in me having a mild traumatic brain injury that was most likely made out to be worse than it was. I was originally treated only for two fractures but finally after pushing the hospital staff enough they treated another fracture. This left two other fractures and a rotator cuff to be dealt with by other physicians. There may have been one other fracture but the doctor that I trust said if it wasn’t bothering me he saw no reason to x-ray it. It made sense to me. I also had to deal with vestibular dysfunction of central origin and tingling painful headaches. After being told my memories were false and I was not wearing my seat belt I still had a lot to deal with…….I know I need to close this soon….Let me try to be brief.

  1. In hospital ROSS Informational Processing tests says I’m okay. Further testing the next day with WJIII test of Cognitive abilities given when I was high on IV Morphine, Sublimaze and oral Lortab. I voiced my my desire to not participate in test that I learned later was being given by a graduate speech therapist student under another therapist, not present, that had been licensed less than one year. I was never told this could have a bearing on my career or if I had a husband that was a bad father, could have obtained custody at that time. My main goal was to get out of hospital and into a rehab one.
  2. At rehab hospital did fine except with speech therapist. In the hospital did okay with neuropsych it was later that I has issues with her advice. Again the speech therapist did not tell me her testing had a bearing on my career. An issue of flexibility came up. I really didn’t pay much attention to her because my focus was on getting physically well. The test that showed I had flexibility issues is stupid. I filled in blank boxes on the basis of info given. She said what if I had to do it another way. I said is this correct. She said that is not the issue. I am like what then. How can you find a flaw in the logic if I was correct? How does this determine someone is inflexible? I can see how it might if I were working with stupid people that would not might argue my information was wrong. Then the discussion went to the fact that I was paid to be inflexible. I told her if I didn’t think a drug order was filled correctly I would not let it go out the window. She was fit to be tied. She also went on to say how she had shown me to adapt to my problems by taking notes. I said you did nothing. I have always done better with a pen in my hand by writing things down.
  3. The speech therapist that I had during home health was also a pain with their testing. I was asked what a sun shinning, lemonade and a school bus might remind me of. I said my son coming home from school and having a refreshment on a nice day. Well I should have said yellow. What do kerosene, gasoline and oil have in common? I said they are all combustible fuels. Wrong she wanted the answer liquids. I was given some tasks to do…she could not do she said because she had read the directions recently. Well if she needs help she should not be giving the test or evaluating a person doing the tasks.
  4. Without going in to a long story I was vindicated in being proven right about having 2 more fractures but still felt out of sorts. I asked for counseling thing it was the mild brain injury. This neuropsychologist tried to help. Bear in mind they are considered the experts on how the brain injury has affected a person both emotionally and in fine motor function. She said I was bipolar and was before the accident. I was pretty moody. I was in pain and having bad headaches. What I had was missed by my very good PCP, neurologist and optometrist trained inn treating brain injured. It took some time but a vestibular test revealed dysfunction which could cause one to be tired, dizzy and complicate headaches. I would think it could contribute to my anger and short fuse. My research had shown that vestibular research could help. Yet, every time I asked her if the brain injury could have anything to do with my issues the answer was a big fat no. My neurologist put me on something for the headaches which helps but the therapy helped a great deal also.
  5. I could go one with more but I will leave you with this. If neuropsych’s are the primary providers treating our military when they return, how many are getting the wrong treatment? It has been stated that those with brain injury often end up with a drug problem. Could it be that given the right test and treatment they might not end up that way? How many are put on mental health drugs that just need this therapy and some medication for real headaches?